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WORLD DOWN SYNDROME DAY 2019

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DOWN SYNDROME CREED

 Long Island Celebrates!
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2019 
3 days - 4 events -  4 locations! 
Choose One... Choose All! 

Saturday, March 16
1 to 5 p.m., Hicksville

Sunday, March 17
2 p.m., Farmingdale 

Wednesday, March 20
1:30 p.m., Mineola
and 
5:30 p.m., Jericho 

Scroll down for details on each of the above activities and to register.

 
PURCHASE
WORLD DOWN SYNDROME DAY 
T-SHIRT  

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And wear them to our events on March 16 and 17
and, of course! on 3/21 and beyond!
 
 
Youth, any size $8
Adult S to XL - $10
Adult 2XL - $12
Adult 3XL and 4XL - $15 

To order: Please email us at alexandersangels321@gmail.com for instructions



PLACE AN AD OR MESSAGE 
IN OUR JOURNAL

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   Journal Cover 2018

Click here for journal ad rates (special rates for family)

Deadline to submit ad/message with payment:
February 28, 2019.

 Saturday, March 16, 1 to 5 p.m.
Awareness and Fundraising Fun Event
At Broadway Commons, N Broadway, Hicksville, NY 11801
A project of Alexander's Angels Youth/Self-Advocate Group in collaboration with the Broadway Commons 

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We raised awareness and also raised funds for research
while rocking the extra chromosome! 
Sunday, March 17 at 2 p.m.
Wood Pallet Sign Fundraiser at The Main Event
1815 Broadhollow Road, Farmingdale, NY  11735
 
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 We had lots of fun raising funds for research! 

Wednesday, March 20,2019 at 1:30 p.m.
 The Up of Down:  An Insight Into the World of Down Syndrome
Three-hour Joint Provider Conference with Alexander's Angels Inc. and NYU Winthrop Hospital 
NYU Winthrop Research and Academic Center Auditorium
101 Mineola Boulevard, Mineola, NY 11501 

Speakers from a broad spectrum of specialties will highlight Down syndrome research progress 
A registration link will be provided soon
Scroll down for information on a celebration dinner to end the World Down Syndrome Day celebration

KEYNOTE SPEAKER

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Dr. Roger Reeves, PhD 
Johns Hopkins University School of Medicine
McKusick-Nathans Institute of Genetic Medicine 

TOPIC:  Targeting the SHH Response Deficit to Improve Learning and Memory 
 

                            SESSION I                         

Room A 
 
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Dr. William Mobley, MD, PhD 
University of California San Diego 
 
TOPIC:  Rethinking Alzheimer Disease in the Context of Down Syndrome
(Presenting via teleconference) 

Room B

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Dr. Kelly Sullivan, PhD
University of Colorado
Anchutz Medical Campus
 
TOPIC:  Deciphering the role of aberrant interferon signaling in Down syndrome 

Room C

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Dr. Stefan Pinter, PhD
UConn Health

TOPIC: Gene dosage in cellular models of trisomy 21  

   SESSION II

Room A 

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Dr. William Bryson-Brockmann, PhD 
NYU Winthrop Hospital 
 
TOPIC: Common developmental and behavioral issues of individuals with Down syndrome 

 Room B

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Dr. Christopher Hartnick, M.D., M.S.
Mass. Eye and Ear Infirmary 
 
TOPIC:  Review FDA approved study looking at the effect of Hypoglossal Nerve Stimulation in treating children ages 10 to 21 with Down syndrome and significant Obstructive Sleep Apnea (OSA). 
(presenting via teleconference) 

Room C 

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Dr. Xiao-Fei Kong, MD, PhD 
Rockefeller University 
Columbia University 
  
TOPIC:  The Immune System in Down Syndrome 

SELF-ADVOCATES
(introducing the speakers) 
 
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Kyle Erickson             Jamie Bernstein       Matthew Hoffman       Katherine Giunta            
 
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              Meghan Schaefer                  Brittany Schiavone         Richie Henn

Click here to download Conference Brochure

REGISTRATION online is now closed.  You may register on site tomorrow at 1 p.m.


SOLD OUT!- Wednesday, March 20, 2019 at 5:30 p.m. - SOLD OUT!
Dinner featuring musician Sujeet Desai
At Lisbon Cafe, 399 Jericho Turnpike, Jericho, NY 11753  

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Don't miss it!  
First musician with Down syndrome to play at Carnegie Hall (2015)
Sujeet plays more than seven different instruments and has travelled to 15 countries and to many of the 50 U.S. states to share his music. 
He has been an ambassador, among others, for Down Syndrome International (DSi), National Down Syndrome Society (NDSS),
and National Down Syndrome Congress (NDSC).

 
 Alexander's Angels... 
 
Raising Awareness...
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DOWNrightART Exhibition of the works of artists with Down sydrome established by Alexander's Angels in 2008.
 
And, Supporting Research on Down Syndrome
Down syndrome research is already shedding light upon Alzheimer's disease, cognition, the immune system, and cancer.  Thus, insight gained by these investigations, hold the potential to significantly benefit not only those with Down syndrome, but the broader general population.