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This page provides links to information about other DS organizations, as well as other related topics and sources of information.

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LOCAL AND NATIONAL DOWN SYNDROME ORGANIZATIONS

Association for Children with Down Syndrome... www.acds.org  ACDS is dedicated to providing lifetime resources of exceptional quality, innovation and inclusion for individuals with Down syndrome and other developmental disabilities and their families.

Down Syndrome Advocacy Foundation... www.dsafonline.org  DSAF believes that individuals with Down syndrome have the right to be respected as valued members of society with their own level of independence, self determination, and sense of belonging in the community.

Down Syndrome Connection of Long Island... www.dscli.org  DSCLI aims to unite the local Down syndrome community so that we may share information, support, resources and experiences.

Down Syndrome Education USA http://www.dseusa.org/en-us/ DSE improves education for children with Down syndrome through scientific research, and specialist resources and services. We work closely with Down Syndrome Education International, a renowned leader in Down syndrome research and education support services. Together, we help over 70,000 families, professionals and organizations in North America each year.

Down Syndrome International... https://www.ds-int.org  DSI is a UK based international charity, comprising a membership of individuals and organisations from all over the world, committed to improving quality of life for people with Down syndrome worldwide and promoting their inherent right to be accepted and included as valued and equal members of their communities.

Down Syndrome Research Foundation (Canada). www.dsrf.org. The mission of DSRF is to empower individuals with Down syndrome to reach their full potential throughout life by pioneering and providing educational programs and services, grounded in foundational research.  Working with researchers, professionals, and families, we are a bridge between research and practice.

 Down Syndrome Research Foundation (UK)www.dsrf-uk.org has a mission to undertake research which will help to identify and develop interventions which alleviate the medical, physical, developmental and cognitive conditions associated with Trisomy 21 (T21) which are collectively described as Down’s syndrome.

Down Syndrome Indiana. http://www.dsindiana.org/  Down Syndrome Indiana is dedicated to enhancing the lives of individuals from infancy through adulthood.
 
Elis Heart.  http://www.elisheart.org. Eli's Heart is a 501 (c)(3) organization that helps families with traveling expenses associated with medical procedures. 

Global Down Syndrome Foundation https://www.globaldownsyndrome.org/ The Global Down Syndrome Foundation is a public non-profit 501(c)(3) dedicated to significantly improving the lives of people with Down syndrome through Research, Medical care, Education and Advocacy. Formally established in 2009, the Foundation’s primary focus is to support the Linda Crnic Institute for Down Syndrome, the first academic home in the United States committed solely to research and medical care for people with Down syndrome. Since Down syndrome is the least-funded genetic condition in the United States, fundraising and government advocacy to correct the alarming disparity of national funding for people with Down syndrome is a major goal.

International Mosaic Down Syndrome Association http://www.imdsa.org.  With a mission to support any family or individual who life has been touched by mosaic Down syndrome by continuosly pursuing research opportunities and increasing awareness in the medical, educational, and public communities throughout the world.

LuMind Research Down Syndrome Foundation.  https://www.lumindfoundation.org/ The mission of the LuMind Foundation is to stimulate biomedical research that will accelerate the development of treatments to significantly improve cognition, including memory, learning and speech, for individuals with Down syndrome so they: participate more successfully in school; lead more active and independent lives; and avoid the early onset of Alzheimer's Disease.

MedlinePlus: Down Syndrome... http://www.nlm.nih.gov/medlineplus/downsyndrome.html Mediline Plus offers reliable, authoritive information about Down Syndrome. Information is catagorized for quick access to just the information you need! Subjects covered include: The Basics, Alternative Therapies, Clinical Trials, Organizations and much much more.

National Association for Down Syndrome... http://www.nads.org/ "NADS is the oldest organization in the country serving individuals with Down syndrome and their families. It was founded in Chicago in 1961 by parents who chose to go against medical advice and raised their children with Down syndrome at home." On this website you will find: general information about Down Syndrome, resources, links, information about local support groups and more.

National Down Syndrome Adoption Network.  www.facebook.com/dsadoption. With a mission to ensure that every child born with Down syndrome has the opportunity to grow up in a loving family, NDSAN is encouraging parents of children with Down syndrome to consider providing them with the opportunity to have a sibling with Down syndrome. 

National Down Syndrome Congress... http://ndsccenter.org/ The mission of the NDSC is to provide information, advocacy and support concerning all aspects of life for individuals with Down syndrome. Founded in 1973, the National Down Syndrome Congress is the country’s oldest national organization for people with Down syndrome, their families, and the professionals who work with them. 

National Down Syndrome Society... www.ndss.org  NDSS envisions a world in which all people with Down syndrome have the opportunity to realize their life aspirations. NDSS is committed to being the national leader in enhancing the quality of life, and realizing the potential of all people with Down syndrome.  Here you can find a wealth of information about topics such as education, health and down syndrome in the news.

Reece's Rainbow - International Down Syndrome Orphan Ministry... http://reecesrainbow.org The mission of Reece's Rainbow is to rescue orphans with Down syndrome through the gift of adoption, to raise awareness for all of the children who are waiting in 25 countries around the world, and to raise funds as adoption grants that help adoptive families afford the high cost of adopting these beautiful children.

Riverbend Down Syndrome Association...   http://www.riverbendds.org The Riverbend Down Syndrome Association is incorporated in Illinois as a not-for-profit corporation and a tax exempt organization under Section 501(c)(3) of the Internal Revenue Code with Employer Identification Number: 14-1982424. We are an all volunteer group that provides support and information to parents of children with Down syndrome in Southwestern Illinois. Our aim is to support each other and enrich the lives of our children so they may reach their fullest potential to lead an independent life within the community. The copyrighted information provided on this web site is for personal and non-commercial use.

Sharing Down Syndrome AZ... www.sharingds.org   The Mission of Sharing Down Syndrome Arizona is to educate and empower, but especially give hope to individuals who have Down syndrome (and their families who love them) so these children may grow up to become independent self-advocates. We promote positive acceptance, understanding and inclusion is embraced by all as we celebrate each life. 

DOWN SYNDROME ACTIVITIES/GROUPS/SERVICES

Buddy Walk®... www.buddywalk.org The Buddy Walk® was established in 1995 by the National Down Syndrome Society to celebrate Down Syndrome Awareness Month in October and to promote acceptance and inclusion of people with Down syndrome.  Since 1995, the Buddy Walk® has become the premier advocacy event for Down syndrome in the United States. It is also the world's most widely recognized public awareness program for the Down syndrome community.The majority of Buddy Walk® organizers are volunteers who recognize the need for more inclusion in their communities, and they work all year planning a meaningful and educational event for individuals with Down syndrome and their supporters. Alexander's Angels is the organizer of the Buddy Walk in Long Island.

 Elis Heart. www.elisheart.org.  Eli’s Heart aims to help families with the travel expenses associated with getting their babies’ hearts repaired.  They do this by asking caring people to donate frequent traveler points, credit card rewards points and cash donations.

Global Prenatal Testing Pamphlet.  http://www.downsyndrometest.org/. Research in the U.S. shows the majority of doctors and medical students receive little or no training related to prenatal diagnosis for Down syndrome, and parents often receive inaccurate information about the diagnosis.The purpose of the Down Syndrome Prenatal Testing Pamphlet is to provide current, accurate, and free information about Down syndrome to pregnant women. The pamphlet is available in English and Spanish, and in both print and electronic formats. The English and Spanish pamphlets can be viewed or downloaded from their website.

Linda Crnic Institute for Down Syndrome http://www.ucdenver.edu/academics/colleges/medicalschool/institutes/lindacrnic/Pages/lindacrnic.aspx. 
The Linda Crnic Institute for Down Syndrome was founded in 2008. It is the first global institute to encompass basic research, clinical research and clinical care specifically for people with Down syndrome. The mission of the institute is to eradicate the medical and cognitive ill effects associated with Down syndrome. Significantly improving the lives of people with Down syndrome is a major focus. The institute partners are the University of Colorado Anschutz Medical Campus, the University of Colorado Boulder and Children’s Hospital Colorado.

Mr. Blue Sky... www.mrblueskymovie.com  An unconventional love triangle between three childhood buddies; two girls, one born with Down syndrome, and one boy, who all grow up fighting who they are inside, how they are perceived by society as a whole, and who they ultimately strive to become as individuals through the obstacles that are inherently present.

 Ruby's Rainbow... www.RubysRainbow.org.  The mission at Ruby’s Rainbow is to grant scholarships to adults with Down syndrome who are seeking post-secondary education, enrichment or vocational classes. It is their goal to create awareness of the capabilities of these amazing individuals and help them achieve their dreams of higher education.

World Down Syndrome Day... http://www.worlddownsyndromeday.org/World.  World Down Syndrome Day (WDSD) is observed on 21 March. On this day, people with Down syndrome and those who live and work with them throughout the world organize and participate in activities and events to raise public awareness and create a single global voice for advocating for the rights, inclusion and well being of people with Down syndrome.  The date for WDSD being the 21st day of the 3rd month, was selected to signify the uniqueness of the triplication (trisomy) of the 21st chromosome which causes Down syndrome. The original idea was proposed by members of the European Down Syndrome Association and Down Syndrome International. On 19 December 2011, the United Nations General Assembly declared 21 March as World Down Syndrome Day. The General Assembly decided to "designate 21 March as World Down Syndrome Day, to be observed every year beginning in 2012;" and "invites all Member States, relevant organizations of the United Nations system and other international organizations, as well as civil society, including non-governmental organizations and the private sector, to observe World Down Syndrome Day in an appropriate manner, in order to raise public awareness of Down syndrome;".

National Down Syndrome Adoption Network. http://www.ndsan.org.  Their mission is to ensure that every child born with Down syndrome has the opportunity to grow up in a loving family. Not all birth families feel they are able to meet the needs of a child born with Down syndrome. The National Down Syndrome Adoption Network provides information to birth families who may be seeking alternatives to parenting as they prepare for the arrival of their child. Making an adoption plan for a child with Down syndrome is a loving choice and can be the right choice for some families. The NDSAN is also here to provide support to families who wish to adopt a child with Down syndrome. There are no fees for any of the services provided by the National Down Syndrome Adoption Network.

Down Syndrome.com... http://www.downsyndrome.com/ The mission of Downsyndrome.com is to make our communities more informed and accommodating. Please join us in our pursuit to change the world. Ask questions, make friends, share stories, brag. People visit every day coming together across DownSyndrome.com to explore and express their interests, share information, make friendships, and meet new people around the world.

 Specs 4 Us www.SPECS4US.com  The Specs 4 Us mission is to improve the sight and quality of life for children with Down syndrome by providing custom frames that fit their unique needs.

Downs Designs Dreams, formerly Downs Designs.  http://www.downsdesignsdreams.org  --Special clothes for special people.  They recently became a nonprofit combining Downs Designs (for the unique shapes of those with Down syndrome) and their NBZ (for typical body types assisting autism, cerebral palsy, Parkinson's, stroke, disabled veterans and many other disabilities which may cause dressing challenges). Both lines offer a free try on service and are constructed with spandex denim, elastic waistband, without zippers, buttons or tags.  Through their Adopt-A-Jean program, individuals, groups or work places can sponsor jeans so they may donate to those in need.
 

Sprout.... www.GoSprout.org Sprout is a private, non-profit organization, founded in 1979, offering innovative programming related to the field of developmental disabilities. The travel and recreation programs are dedicated to helping individuals with intellectual and developmental disabilities grow through challenging and safe travel experiences. Programs are available to people with intellectual and developmental disabilities and the agencies that serve them throughout the United States.  People with developmental disabilities as subjects and performers remain marginalized in the media. By creating and presenting films of artistry and intellect, Sprout hopes to reinforce accurate portrayals of people with developmental disabilities and expose the general public to important issues facing this population.

Strider Bikes. www.striderbikes.comSTRIDER™ balance bikes are industry-leading training bikes that help children as young as 18 months learn to ride on two wheels. STRIDER balance bikes focus on the fundamentals of balancing, leaning, and steering without the distractions and complications of pedals or training wheels.

OTHER HELPFUL LINKS:

Dr Julie Causton, Spec ED Professor, Syracuse, NY, http://www.inspireinclusion.com/
 
Patrick G. Radel, Attorney in Utica, NY, http://www.getnicklivingston.com/
 
Diane Ripple, Educational/Behavioral Consultant, http://www.cmdi.us/ 631-680-8470

 

DOWN SYNDROME TALENT

Chris Burke (actor) www.chrisburke.org

Ashley Wolfe (actress)... http://www.mrblueskymovie.com/cast.htm

Visual Artists

Erik Behnke... http://brownbearproducts.biz

Ashlee Birckhead... http://www.ashleesart.com

Jane Cameron... http://www.janecameron.com 

Christopher Diedo...  http://www.christopher-diedo.co.uk 

Cinnamon Edgar.... http://www.cinnamonsfloridakeysart.com

Daniel Forsythe... http://danielforsythe.com/

David Guhl... http://www.davidguhl.com 

Dylan Khuel... http://www.oly-wa.us/DKarts/

Michael Jurogue Johnson... http://www.artistmichaeljohnson.com

Marilin Rivera... http://www.marilinrivera.com 

Haile King-Rubie... http://hailesimoart.com

Bernadette Resha... www.bernadetteresha.com

Judith Scott...  http://judithanjoycescott.com